Inspired By Gisele
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Encouragements

3/25/2014

1 Comment

 
Gisele is doing about the same overall. She has an MRI scheduled for tomorrow so we can see any improvements. Results sometimes take a while to get so we might not be able to update everyone until the following day.

Respiratory wise, she's doing about the same. She's still having the occassional spell of respiratory distress, where she needs some intervention to get back on track. Often it's caused by simply crying. When she starts crying, her throat clamps down on the tube and keeps her from getting enough air. She needs to be kept calm, preferrably without medicine given just to calm her. Her nurses have been great with comforting her, and helping me understand how to comfort her too. Tonight, Jessica E. was really helpful and encouraging to me with swaddling Gisele. Until tonight, I would try swaddling her for a couple minutes, but I believed that after two minutes of it not working I was just bothering her more than anything. I would run away (poor Gisele) and go sit down. Jessica told me to be persistent. And wouldn't you know? It worked. Seeing Gisele finally settle down made me feel more like a mom. It made me so content being able to help my baby. It was very sweet.

As I was leaving, another of her nurses, Angela, stopped me. She told me that her church included Gisele in their printed prayer requests. She was excited and amazed about it, and so was I just hearing about it. I was so touched by this I started to get choked up. She said, "Stop it, you're going to make me cry." As she got choked up she turned to walk away and I said, "Me too!" We laughed and parted ways, still teary eyed. It's so encouraging to know so many people are asking God to help Gisele.


1 Comment
Odette
3/26/2014 01:02:45 am

Ah, swaddling, that takes me back to when my children were infants…. They LOVED that! They say it’s a security thing, like they are back in the womb or being hugged tightly. How tranquil that is for a child (and in this case, the mommy!).
Each day brings little tidbit s of good news. Praise God for that! Our prayers are unceasing, powerful and being heard by an even more powerful loving Father.
Much love to you sweetie…….

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    Medical History:

    Born 2/7/14 eight weeks early with a large SCT tumor (Sacrococcygeal Teratoma) and lymphangiectasia causing severe chylothorax (aka pleural effusion).

    She weighed about 4 lbs plus the 2.5 lb tumor.

    Major five hour surgery to remove it on 2/13. Had to be resuscitated for about 90 mins when surgery was almost complete. It's a miracle she survived, and did not have significant brain damage. 

    The chylothorax caused a weak immune system and she passed away from a pneumonia infection on 5/21/14.

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