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Today's surgery is tentative

4/10/2014

2 Comments

 
Gisele developed "wet lungs" early this morning and needed to go back on the high-frequency ventilator (to help her lungs get the oxygen in and the CO2 out). It appears to be clearing up already, but because this ventilator wiggles the lungs she, of course, cannot go into surgery wiggling. She does not appear to have the flu or any infection. It appears to be caused by the fact that she has the Chylothorax and it just needed to be draining a bit more. After being drained a bit faster it started clearing up. If her lung situation improves enough to go back on the regular ventilator, then she should have surgery tonight. Later today her surgeon will make the decision on whether or not to move forward. I'll post an update this afternoon when I have more information.

Tiffany

1:15pm: She's having a better day. She's sleeping good, and has short periods of being calmly awake. Her surgeon thinks she should be fine going to surgery. We have to wait for the anesthesiologist to give their approval too.

5:45pm: No surgery today. Maybe in a couple more days. Nothing else significant happened to her. They just want to get her back on the regular ventilator then see stability, as in see her doing good for longer with it before surgery.
2 Comments
liz
4/10/2014 09:48:04 am

Been thinking about you all day.
Praying for your baby girl ♥

Reply
Tiffany
4/11/2014 04:18:15 am

Thank you! :D

Reply



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    Medical History:

    Born 2/7/14 eight weeks early with a large SCT tumor (Sacrococcygeal Teratoma) and lymphangiectasia causing severe chylothorax (aka pleural effusion).

    She weighed about 4 lbs plus the 2.5 lb tumor.

    Major five hour surgery to remove it on 2/13. Had to be resuscitated for about 90 mins when surgery was almost complete. It's a miracle she survived, and did not have significant brain damage. 

    The chylothorax caused a weak immune system and she passed away from a pneumonia infection on 5/21/14.

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