Surgery postponed

4/5/2014

She's okay, but her electrolytes are not balanced enough for surgery at the moment. It's normal for this to happen because of continuous fluid lost, so it's not extremely concerning. They are always monitoring and correcting this problem with replacement fluids.

She is likely to have surgery within the next few days. As soon as she's in balance they'll go ahead with it. I'll update the blog as soon as I have updates. If there is no update, know that nothing has changed.

Tiffany

2 Comments

Odette

4/7/2014 02:45:53

Hello all,
Our church family had a gathering Friday evening and joined in prayer for baby Gisele and your ENTIRE family. God has a reason for all the postponements and I ‘m sure they a very GOOD reasons. His plan is perfect; we just go along for the ride in faith.
I hope everyone (Tiffany) is getting healthy and are able to spend LOTS of time with Gisele. Our church family can’t wait to meet her one of these days!! They feel like they all aunts, uncles, grandparents, to little Gisele. You are all in our prayers constantly. Much love to you.

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Tiffany

4/9/2014 10:26:34

I agree the postponement are definitely for some reason, I believe for her protection. I can't wait for them to meet her. I feel the same way, like all these people praying for her and opening their hearts to her are a part of her life. I look forward to the time when it's safe for her to be introduced to all these people who care so much about her.

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Medical History:

Born 2/7/14 eight weeks early with a large SCT tumor (Sacrococcygeal Teratoma) and lymphangiectasia causing severe chylothorax (aka pleural effusion).

She weighed about 4 lbs plus the 2.5 lb tumor.

Major five hour surgery to remove it on 2/13. Had to be resuscitated for about 90 mins when surgery was almost complete. It's a miracle she survived, and did not have significant brain damage.

The chylothorax caused a weak immune system and she passed away from a pneumonia infection on 5/21/14.

Surgery postponed

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