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Special thanks to everyone who participated in the Walk for Kids

4/9/2014

2 Comments

 
Thanks to everyone who came out and walked in the hot sun , and who donated to this amazing charity. Seeing you all come out to support us was such a blessing. We're so thankful to have such loving family and friends. You guys are truly amazing!!! See photos from the event here

There are so many families who will benefit from what you all did last weekend. Having a place to stay close by while your child is in the hospital is invaluable. Thank you!

Tiffany

                                                        From birth to 7 weeks
2 Comments
LOUISE HENARI
4/10/2014 01:50:10 am

Sameh and I agree with Tiffany's words. As Gisele's grandparents, we are thankful beyond words to every single one of you. It means everything to us that Ron and Tiffany are able to stay nearby while Gisele receives exceptional care at CHOC. God bless you guys!

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Niki
4/10/2014 04:13:01 am

We truly enjoyed walking for Gisele!! That little girl is loved by all!!

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    Medical History:

    Born 2/7/14 eight weeks early with a large SCT tumor (Sacrococcygeal Teratoma) and lymphangiectasia causing severe chylothorax (aka pleural effusion).

    She weighed about 4 lbs plus the 2.5 lb tumor.

    Major five hour surgery to remove it on 2/13. Had to be resuscitated for about 90 mins when surgery was almost complete. It's a miracle she survived, and did not have significant brain damage. 

    The chylothorax caused a weak immune system and she passed away from a pneumonia infection on 5/21/14.

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