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Good MRI results & a special prayer request for little Ethan

3/26/2014

7 Comments

 
The MRI showed that the major clot in her brain has cleared significantly! What exciting news. She's been doing about the same otherwise. We're told one more week before surgery for her chylothorax (lung drainage) is considered. Please pray that it clears up, but if that's not what God has planned then pray for us and the doctors to make the right decisions about surgery or waiting longer.

Little Ethan is 6 months old. He was born with a cleft palate which caused the development of various internal problems. His family has been dealing with issues non-stop since he was born. He has been having nerve related problems that cause seizures and other issues. He must have surgery for this, but it's very invasive. Please pray for him. Pray for him to be healed, for the medical team involved to do an excellent job, and not least of all for his family. I will refer to them as Mom and Dad. Please pray for their encouragement and that God would please speak to mom and dad about this, and also for his big brother Damian, who is very young but can sense it and gets stressed by everything going on.

His mom will be checking the blog. Please post a comment to let her know you're placing her baby and their family in God's loving hands. Thanks everyone for your prayers.

-Tiffany

Verses and a note for Mom:
Romans 15:13
"May the God of hope fill you will all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit."
Mom, I personally found Isaiah 40 very comforting because it made me think about how incredibly able God is and reminded me that He's in charge of the people in charge of my baby, so I don't have to be afraid. Please read it. We're praying for you! :)

7 Comments
Tiffany's mom
3/26/2014 01:51:19 pm

Wonderful news about the clot. Thank you Jesus for your continued healing touch. :)

To Ethan's mom and dad. Mom, I remember meeting you at RMH. You and your family have been in my prayers. I'm asking the Lord to bring complete healing to that baby, to give you both the strength and courage that you need to deal with this, and for you to find rest and inexplicable peace in our loving heavenly Father.

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Liz
4/9/2014 02:23:24 pm

Thank you so much!! that means so much to us. <3

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Liz link
4/9/2014 02:26:52 pm

thank you do much got those words. it means so much to us. we also have Gisele in prayers! such tough babies they are !!,<3

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Nadia
3/26/2014 02:03:18 pm

So happy to clear that Gisele's blood clot in her brain has cleared! God is good! The Lord is holding her near as He continues to be in the midst of her journey.

I will be praying for baby Ethan. So sorry to hear of his challenges that he is currently facing, as well as his family.

Father, in the storm of these trials, I pray for peace, hope and encouragment among these families that are dealing with the aches and pains of their children. I pray Father that you give baby Ethan and Gisele strength to overcome these difficulties. Father,that through this, Gisele and Ethan would not, in any way, be hindered in life but will gain strength from You and be a witness of Your greatness and love. I pray for Ethan, Father, that the surgeons and doctors would have Your hands and Your heart and Your eyes. Through this surgery, may Ethan be protected and begin the journey of healing. Wrap your arms around Ethan, Damian, and their parents. Give them comfort. May they know you are with them. May they continue to surrender their doubts, fears and worry to you. May they grow in their relationship with you as they trust and look to you through this. In Jesus Name, Amen

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Michelle
3/26/2014 03:45:05 pm

Praying for Baby Gisele everyday. Thank you for the update. Praying for you and Ron. God has been blessing you both with amazing strength. Also praying for Baby Ethan :)

Reply
Odette
3/27/2014 04:14:02 am

Dearest Father God, we are praying faithfully for your healing touch on Gisele and Ethan. We ask you to guide the doctors so that they may know exactly what needs to be accomplished in order to heal these sweet children.
Our faith in You gives us strength – Amen
Matthew 21:22
" If you believe, you will receive whatever you ask for in prayer.”

Reply
liz link
4/9/2014 02:28:55 pm

thank you today was one of those days i needed to hear these things. thank you!

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    Medical History:

    Born 2/7/14 eight weeks early with a large SCT tumor (Sacrococcygeal Teratoma) and lymphangiectasia causing severe chylothorax (aka pleural effusion).

    She weighed about 4 lbs plus the 2.5 lb tumor.

    Major five hour surgery to remove it on 2/13. Had to be resuscitated for about 90 mins when surgery was almost complete. It's a miracle she survived, and did not have significant brain damage. 

    The chylothorax caused a weak immune system and she passed away from a pneumonia infection on 5/21/14.

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